![]() ![]() Thanks first of all for the quick responses. Have you seen a neurotologist for your diagnosis? ![]() People often think oh my labs/VN is giving me a headache, when in fact, it is the reverse and migraine activity (including headaches) is causing the dizziness. Even just a few years ago specialists weren’t as informed about it. They are just catching on to how prevalent it is and learning more about it. I think there are some tougher to treat VN cases, but I also think that for a long time people with MAV may have been misdiagnosed with uncompensated VN. I am not a big believer in uncompensated VN. However, the fact that you have been struggling with VRT for a long time and haven’t seen significant improvements would make me think that MAV is very possible. My VN did creep up slowly and I was informed by a neurotologist that this is not unusual. My illness started off as VN, this triggered a mostly dormant migraine condition and I have now have MAV. Have a read of the answers from Dr Rauch and it is in there somewhere, I think. Interestingly one of the things he did highlight was that when VRT makes people worse, he generally takes that as diagnostic of MAV. There is a specialist who has given some answers to questions posted on these boards. It is impossible to give anyone an absolutely definitive MAV diagnosis as there are no tests which will absolutely tell a person they have it. No inflamation, there is no Nystagmus, no problems with my hearing and no ear pain. None of the tests showed any disfunction in my ears. Note that my diagnosis of Labs/VN was based on symptoms only. It then slowly got better (to a point) and has been rougthly where it is now for a few months. Note that this came on gradually over a few weeks and got worse for about two and a half months before peaking. occasional headaches, that last several days (ibuprofin and paracetamol do nothing) - however this has only happened about four or five times in the ten months since I started feeling dizzy, but I never really sufered from headaches before.Nausea, usually when the dizziness gets bad.A constant feeling of dizziness, disequilibruium, that once every week or two goes from just annoying to really bad.I am wondering however as I am still really bad and the vrt often makes me worse, if I was misdiagnosed and that I could perhaps have MAV.Īny opinions that you have would be gratefully appreciated. I am still really dizzy and sick most of the time though. I was diagnosed nearly a year ago with uncompensated Labs/VN and have been working on a VRT program for quite a while now. I’m new to the forum and have had a heck of a bad year.
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